All things considered I have been doing very well since my last update. The last two months I seemed to catch a couple colds and the flu but it didnt exacerbate my (non-existing) base line MS symptoms. I also ended up with a horrible gum infection that oral antibiotic wouldn't eradicate. After about 45 days of three different oral antibiotics I was admitted to "Urgent Care" and given an IV cocktail of antibiotics as they feared I had osteomylitis. (bone infection) I ended up going home with an IV line and being sent to a maxiofacial surgeon. Luckily it was found that I didnt have a bone infection but I did require a root canal. It's been about ten days since the root canal and I was given more oral antibiotics post op. The funny thing is I still have a bright red area on my gums and it is still tender there also, which makes me think the infection is not yet conquered. Guess I'll be calling the dentist on Monday. Geeez!
My concern is that my immune system is screwed up now from all the meds and it's not even winter yet! I still have cold and flu season to survive! I am not certain if my immune system problems are "leftovers" from before I had the angioplasty or just a result of over prescribed antibiotics. Through this whole time, though I was able to work and play with no noticeable exacerbations! If this would have occurred before my treatment I would have had a symptom flare up and been home bound for the duration.
My plan is to try to stabilize my immune system through diet. Years ago, when I was first Dx'd I went on the "MS diet by Dr. Swank. Basically its a zero saturated and trans fat diet so no dairy and no red meat. I tried some of the other diets that are purportedly good for MS patients but I crashed and burned on the gluten free one. I LOVE my bread! I can live without pasta but I crave bread. The only foreseeable problem with the Swank diet for me is the "no red meat" rule. I do not eat a lot of red meat but I do get headaches when I havent had it in awhile. (Strange but true) I also need to watch my red blood cell level as I am already borderline anemic. I did start supplementing with a time release complex vitamin B to help with the anemia problem.
I havent been to physio in over a month as my legs have been feeling really good and strong. I use the stairs at work frequently and am on my feet the whole day and this has really helped me. Im not running yet but Im feeling like I may be able to shop for the thigh high hooker boots with 3 inch heels and dance on a table or two!
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ReplyDeleteI have been on a modified protien diet for a few months. It has not only helped me lose weight but I feel better. No cravings, no hunger pangs.
You really have to like meat though and you are limited to 100 grams of carbs per day. So you can have some bread and eat it too.
Stent has proved to be a life saving tube for cardiac patient which is used in angioplasty surgery. The tube is a tiny, expandable, mesh-like tube made of a metal such as stainless steel or cobalt alloy. A cardiac stent is a small tube that is used to widen arteries supplying the heart that have narrowed. Stent for heart is sold by different companies in the world.Stent for heart
ReplyDeleteIt is estimated that the failure rate of the “liberation therapy” may be 50% or higher, even through the most experienced surgeons in Poland & Albany. As more people receive the therapy there is growing concern amongst patients that http://www.ccsviclinic.ca/?p=765 the procedure needs to include a post-procedure protocol that is more effective than simply releasing the patient from the hospital within a day.
ReplyDeleteIt should be mentioned that our research is under much scrutiny & attack from elements that are trying to control the industry & the dialogue.We would ask you to have the independence of thought to see through their campaign of deceit. http://www.ccsviclinic.ca/?p=783Regular research updates will be published on the Clinic website. Questions about participation may be directed toward the Clinic administration at 888-419-6855.
ReplyDeleteThere is a difference between responsible reporting and what Melissa Martin chose to write about the CCSVI Clinic in this article. She was in possession of factual information and documents that put the CCSVI Clinic in a favorable light but chose to withhold the information she received from the physicains and researchers at CCSVI Clinic that would have conflicted with her agenda to smear our reputation in order to sensationalize her story. At no time did anyone from the CCSVI Clinic pressure patients into going to India for the Liberation Procedure. She should have considered that the one single person who made that claim clearly had her own agenda because she was disheartened by her 'borderline' results. We simply provide information to people about our enhanced hospital stay and aftercare program should a patient decide to have the procedure. You can't pressure someone to make an important decision about their health and all of our literature clearly states that. These MS patients are more knowledgeable about the CCSVI condition and about the options for treatment than most physicians are. To suggest that they can be pressured into a decision to have the procedure done in India is ludicrous. Patients who have signed up to be part of our open-ended study on the safety and efficacy of an enhanced aftercare protocol to reduce the rate of re-stenosis versus having the procedure on an outpatient basis (which may be contributing to long term failure of the procedure) have done so to ensure that they are getting the best care possible and because they want to be part of the important work we are doing for MS patients. http://www.ccsviclinic.ca/
ReplyDeleteCCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
ReplyDeleteDr. Don Simonson, the Principal Investigator for the study agrees; “Of course there are other reasons that patients restenose, depending on the condition of their veins in the first place, and operator inexperience, so we have designed a study that isolates the aftercare protocol because we feel it may be at least as important, and in any case well worth studying.”
CCSVI Clinic is already sponsoring patients for this protocol with a 10-day stay in the hospital where patients will be imaged daily, post procedure. If there is evidence of re-occlusion, they will be taken back to the OR and re-treated. To comply with the IRB approval, once home, patients will be examined and/or surveyed at regular intervals by a Principle Investigator (PI) for several years after the treatment to study the changes. Patients will have regular consults with the surgeon who performed their procedure as part of the protocol.
More and more MS patients are reporting initial success (including vascular and some neurological differences) as a result of the venous angioplasty (liberation therapy) but then regression to previous symptoms sometimes within weeks post-procedure. It is estimated that the failure rate of the “liberation therapy” may be 50% or higher, even through the most experienced and best-known surgeons. Consequently, there is increasing concern amongst patients that the liberation therapy hypothesis needs to include a post-procedure protocol that is more refined than simply releasing the patient from the hospital or clinic within hours or a day of the procedure. If the study hypothesis is correct, it means that there are many other considerations that indicate a post-procedure stabilization period, re-examination, and re-treatment if necessary.Please log on to http://ccsviclinic.ca/?p=830 for more information.
After 6 months of offering stem cell therapy in combination with the venous angioplasty liberation procedure, patients of CCSVI Clinic have reported excellent health outcomes. Ms. Kasma Gianopoulos of Athens Greece, who was diagnosed with the Relapsing/Remitting form of MS in 1997 called the combination of treatments a “cure”. “I feel I am completely cured” says Ms. Gianopoulos, “my symptoms have disappeared and I have a recovery of many functions, notably my balance and my muscle strength is all coming (back). Even after six months, I feel like there are good changes happening almost every day. Before, my biggest fear was that the changes wouldn’t (hold). I don’t even worry about having a relapse anymore. I’m looking forward to a normal life with my family. I think I would call that a miracle.”
ReplyDeleteOther recent MS patients who have had Autologous Stem Cell Transplantation (ASCT), or stem cell therapy have posted videos and comments on YouTube. www.youtube.com/watch?v=jFQr2eqm3Cg.
Dr. Avneesh Gupte, the Neurosurgeon at Noble Hospital performing the procedure has been encouraged by results in Cerebral Palsy patients as well. “We are fortunate to be able to offer the treatment because not every hospital is able to perform these types of transplants. You must have the specialized medical equipment and specially trained doctors and nurses”. With regard to MS patients, “We are cautious, but nevertheless excited by what patients are telling us. Suffice to say that the few patients who have had the therapy through us are noticing recovery of neuro deficits beyond what the venous angioplasty only should account for”.
Dr. Unmesh of Noble continues: “These are early days and certainly all evidence that the combination of liberation and stem cell therapies working together at this point is anecdotal. However I am not aware of other medical facilities in the world that offer the synthesis of both to MS patients on an approved basis and it is indeed a rare opportunity for MS patients to take advantage of a treatment that is quite possibly unique in the world”.
Autologous stem cell transplantation is a procedure by which blood-forming stem cells are removed, and later injected back into the patient. All stem cells are taken from the patient themselves and cultured for later injection. In the case of a bone marrow transplant, the HSC are typically removed from the Pelvis through a large needle that can reach into the bone. The technique is referred to as a bone marrow harvest and is performed under a general anesthesia. The incidence of patients experiencing rejection is rare due to the donor and recipient being the same individual.This remains the only approved method of the SCT therapy. For more information visit http://ccsviclinic.ca/?p=838