Every time I hear the media talk about the angioplasty for CCSVI they always use the terms controversial and experimental. I just about crawl out of my skin when I hear this. It infuriates me that the simple angioplasty to unblock our veins has been categorized as such when, in fact, it is not new or experimental! Angioplasties have been performed for many years in Canada and the world! The exact same procedure I had to unblock my jugulars is the very same one that kidney dialysis patients undergo to unblock their jugulars when they collapse from their kidney treatments.
If we expect our government and health care to listen to us and approve this procedure we need to talk to them and the media using the proper language and terms. Since the media has latched on to CCSVI they have been calling it the Liberation treatment as Dr. Zamboni dubbed it a few years ago. We all should stop using this name or "Zamboni treatment" or "CCSVI surgery". Many people hear those names and since they are new they assume the treatment is new, when it is not. Folks in the medical field know the treatment is not new or experimental but the naysayers use the ignorance of the general public against us. Our health Minister Gene Zwozdesky is not a Doctor.For the sake of our cause to get angioplasty for all Canadians please use the term ANGIOPLASTY from now on when discussing this procedure.
The issue at hand is MS patients are being discriminated against by our government because they are being denied angioplasty that is already approved and covered by health care in Canada.
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YEAH GINGER!! You said it, and the more I think about it the more p***ed I get. Born and raised in Canada, and a treatment that can help me I am being denied. So I take the b.s. and spend thousands I don't necessarily have and will go out of country like many, many others have done. Maybe it will get me my job back, who knows??
ReplyDeleteThank god we have some as eloquent and knowledgeable as you on our side!! Thank you!
YAY Ginger! You ROCK my friend! :)
ReplyDelete15 sleeps & I'll be on the dark side with you :)
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ReplyDeleteWe agree Ginger. We've removed "Liberation" from our CCSVI webpage and replaced it with "Angioplasty".
ReplyDeleteThanks Ginger and False Creek Healthcare Centre!!!
ReplyDeleteI have a chronic illness, too. When it was first diagnosed, my doctor told me to just except it and not get my hopes up about a cure. She went on to say that if a cure happened, it would never be in my lifetime. That made the news all the more devastating.
ReplyDeleteAs week later, an experimental treatment was announced. I asked my doctor. She said it would never work. I then heard about other treatment options available. I asked her about them. She dismissed my questions and once again told me to just get used to it.
Fifteen years later, there is still no cure, but there are amazing, wonderful treatments. I finally decided to ditch my doctor and I wound up with a new, young physician open to anything and, above all, open to letting me hope. I am not cured, but I am using state of the art treatment that has allowed me to many things that my old doctor told me to forget about, and above all, I once again have hope.
Ignore the nay-sayers. Eventually they retire!
Agreed, I have said all along that the approach was wrong. This in a vascular problem hence a vascular doctor is in order.
ReplyDeleteAlso I do not remember giving up my right to choose what doctor I see for any different issue like my knee surgeon and infertility specialist and so on, so I do not understand why I can't be referred to a vascular doctor for my vascular problem.
On the funny side I went to get my blood taken and told the nurse why ( scan for narrowed veins) and she said "I can tell you right now you have very small veins" It really made me giggle.
Thank You Ginger for all you are doing.