I went to my GP yesterday as I had to do a driver's medical to renew my license. My Blood pressure was normal. Usually I have low BP so that was surprisingly good. I passed all the physical tests like vision, balance, walking on tip toes and heels and squatting down and being able to stand up unassisted. I think I impressed my GP. I know I impressed myself! I asked him for a referral to a physiotherapist as I want to get my right leg rehab'd. It is still weak and I'm hoping that with time and exercise I can get it to the point where I can backpack the West Coast Trail again and be able to run down the beach if I so desire. One thing I noticed during the examination was my reflexes are still hyper but my GP said in time that may settle down.
I have been riding my bicycle every day the weather permits and I had forgotten how wonderful it feels to physically exert yourself and feel your heart pumping and your body sweating. I love the fact that I can go outside in the heat and enjoy a bike ride whereas before I could never be in the heat for long as all my symptoms would exacerbate and my body would stiffen to the point I could not function. I know this probably sounds lame to someone without MS but when I'm riding my bike down by our pond and watching the birds and muskrats I get the song by Queen playing over and over in my head and I grin from ear to ear! "I want to ride my bicycle! I want to ride my bike! BICYCLE! BICYCLE!" I'm sure the occasional passerby thinks I'm a bit loony grinning from ear to ear with bugs in my teeth but I LOVE IT!!!
I have been doing the MS diet by Ashton Embry at www.direct-ms.org and I hope that by taking better care of my body post op will benefit me even more. I started drinking kale smoothies, every day, on the advice of a friend. I have never been a veggie lover but these are alright and the kale is very good for you too! My friend Wendy suggests you use a whole head of kale in each smoothie but since I'm a newb I started with about four stalks in the blender. I add a little OJ, a whole fresh pear,strawberries, banana, kiwi etc.(I blend all that up together first.) Whatever you like just throw it in! Then add about 2 cups of ice and blend until smooth.
Another great health drink I have been doing is Youth Juice. I drink about 4 oz. per day. It's a super antioxidant too! I am going to start hitting the gym again as I feel that, by now, my stent has had time to settle in.
It's strange but when I first found out that I had MS I realized it was a gift in disguise. It made me realize how precious life is and how important good health is to a quality life. Now that I have been given a second chance I am going to take great care of myself to ensure that I remain as healthy as possible so I can enjoy my life to the fullest.
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After your ‘fix’, there is an artificial (and uncontrollable) decline in ICP (intracranial pressure) supratentorially, that’s why BP increased - your body is trying to maintain proper ICP for your brain. It means your blood is pumping up more, also expect some brain response which could be: venous sinuses dilatation, CBF production increase, malfunction of intracerebral venous ‘valves’ (they are actually sphincters), and eventual ICP increase subtentorially.
ReplyDeleteGinger, sorry for typo, please read CSF (cerebrospinal fluid) instead of published CBF.
ReplyDeleteKind regards,
BR
It's strange but when I first found out that I had MS I realized it was a gift in disguise.
ReplyDeleteI have always felt that way too, but the last year, I've felt that I've been "gifted" enough. Then along comes W5, Zamboni, Dake, Simka, Ludigya, Kostecki, Grodsinski, Mehta, Sclafani, McDonald, Sinan, and the list keeps growing. Timely gifts too, but more pleasant. I follow you to Poland in 21 days.
I have not been able to ride my bike for years, and look forward to the wind (and bugs), and the feeling of my body working as it should. I look forward to real sleeps, and dreams, and dancing, and whatever comes.
Thanks for your accounts.
My name is not really Johnson. Nor is it solipsist. I do have ginger hair though.
Ahhhhh, Ginger!! I can feel your unbridled passion as you smile on that bicycle!! Bugs and all! You GO GIRL!!! Inspired again. Thanks for being you.
ReplyDeleteDonna
~:O)
Hello Ginger
ReplyDeleteMy wife Tarita has had RRMS for the past 12 years. Can you detail the steps or direct me what you did to get to Euromedic in Poland to have your CCSVI Procedure.
Hey Ginger,
ReplyDeleteDo you still see a neuro? If you do I'd love to hear what they have to say at your next appt. about your improvements.
I love adding Youth Juice to my kale and fruit smoothies. Yum. I need to order more!
ReplyDelete@Tarita- This is the place handling the bookings for Dr. Simka and his team. It is over 1 year waiting list though.
ReplyDeleteEuroMedic Poland supports patients with MS suffering from CCSVI.
Location:
Hotel Qubus room 2701, Uniwersytecka 13
Katowice, Poland, 40-007
Mon-Fri:
9am - 5pm
Phone number:
+48 326030230
On my blog on the right hand side is also a link to a list of other Dr's doing the procedure too.
@Jenny-No I divorced him back in December when I knew that the copaxone had not a thing for me. I told him I was on the list to go to Poland and thanked him for everything he had done.
ReplyDelete@Beveik-So now If I follow your theory then am I to beleive that my head will explode like Rose states on every CCSVI forum available?
ReplyDeleteI looked at your theory before I went to Poland because I value your opinion and you do not come across like a wack job like Rose. One thing I don't understand about your theory: If all this doom and gloom is going to hit me once my post op burst goes away, how come folks who were born with valve issues have not died in childhood if their intercranial pressure has been messed up since birth? I think there is some other control mechanism in our brains that knows there is a problem and has been trying to fix it or work around it all our lives. Now that we fixed the drainage problem I feel that our intercranial pressure will stabilize. So many people talk about pain and pressure in their heads and behind their eyes prior to the treatment and then they have it and it goes away. What about the first Liberati that are still doing excellent and have not crashed or had their heads explode?