Something that I had noticed since having the treatment that I didn't bother to add to my list of "perks" was the problem I had post op with aspirating my saliva and choking on it. I noticed this seemed to stop after my treatment but I hadn't realized that it may be attributed to my MS before now. This choking usually happened at least once a day but I figured I was just a clutz and it was "just something I did".
Well yesterday I was eating Jr. Mints and I started to choke. Usually my air passages don't close completely off and I'm able to breath through my nose until my throat clears. This time that didn't happen. My airway was completely blocked and I was gesturing madly to my youngest son to help me. He tried to Heimlich me but there was nothing lodged in my throat. It was just saliva that I had aspirated and it caused my airway to close off. My life did not pass before my eyes but I kept thinking "I'm going to die right now". Somehow, the airway opened up and I began to take wheezing gasps of air and cough.
So is this an MS thing? From everything I have heard from other MS'ers, I kind of think it is.
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Most definitely it is. You described me to a "T". I've also met others with MS that have the same issues.
ReplyDeleteWOW, sorry to hear about your Jr. Mint experience, it would have been hard on your young son too!! Hugs to you both!!
ReplyDeleteI joined my friend on the MS walk in our community on Saturday... felt a little out of place as I wanted to jump up on the band stand and asked why would we gather my money for MS Society and not to help those go for this liberation treatment... bring home our own Ginger Hero... and get the rest excited about liberation... 5 of us wore "CCSVI will make history" t-shirts HOT PINK ONES and on the backs were the words "MS no drain no gain" soooo I think we made a statement to the masses.... I do believe there were walkers who wanted to walk with us... Bless you as you rally on Wed, I will be with you in spirit and waiting to hear if they heard you at the rally and what if anything they are going to do about it.... I want the AHS to pay you back your expenses from the Poland trip!! AHS has a job to help all of its residence and if keeping your feet warm is one of them,,,, pay up Mr Duckett!!!!
Hi, I have a blog about my treatment of CCSVI for MS. Here's the link best of luck
ReplyDeletehttp://tisasmsliberationexperience.blogspot.com/
Yes total MS thing. Happens to me sometimes too
ReplyDeleteHi there. I just found your blog today and an terribly intrigued.
ReplyDeleteI'm from Canada and have a friend in the US who is struggling from MS. She is 26 and can't see her life getting anywhere.
How can I help her get this procedure done?
My mom has MS and has been coughing due to aspirated saliva for years. She's been through an incredible battery of tests, one of which (and MRI) revealed some carcinoid tumors in her lungs. One of the tumors was impinging on her esophagus, so they thought that was causing the coughing. They removed the tumors and the upper lobe of her left lung, and the coughing didn't go away.
ReplyDeleteThe coughing fits she has sound EXACTLY like yours, Ginger. It's terrifying. She really can't breathe and struggles to get air in. It only lasts for a minute or two, but it's clearly really uncomfortable.
Can anyone tell me more about how this relates to MS or what can be done about it? My mom's other symptoms are fortunately really mild and she's on interferon, but the coughing is really a bummer.
Hey Ginger just wondered if you read the Medical Post issue May 4. The article is
ReplyDelete"Zamboni's Ms theory on thin ice"
Dr. Mark Freedman is quoted as saying "the CCSVI theory will be laid to rest within a year but, for now, he calls Dr. Zamboni a "hope monger"
He doesn't make any suggestions what should be done with the 90% MS patients who have blocked veins that should be open.
Kas
Dr Mark Freedman is a hypocrit. He has applied for funds to do CCSVI research. This is a man who talks out of both sides of his mouth and he is not helping by making light of something he knows very little about. The National Post is a disgrace to give him any voice but they love to do that sort of thing.
ReplyDeleteThe choking is most certainly an MS thing
Hi Ginger.. are you viewing this as a setback/ new symptom/ almost hate to say it.. progression?
ReplyDeleteHope you are okay..you sound a bit worried in your most recent update..Patti
Get checked for acid reflux! I had it and the meds worked also I have a gastro who says he can stop it from happening altogether AND he says it is due to spasticity... see an ENT to have the acid reflux test ;)
ReplyDeleteYeah, I've had various problems with swallowing on occasion--ignored it a couple years but finally had to admit it must be the MS. Swallowing problems are a frequent symptom with MS. Also, I once heard a neurologist say that Mark Freedman is all about the research money.
ReplyDeleteDr. Mark Freedman has applied for funds to do CCSVI research so that he can discredit the benefits of the procedure!
ReplyDelete