So today I rode my bike! I'm still in disbelief. I never thought in my widest dreams I would ride a 2 wheeled bike again. One thing I have noticed the last couple nights is my sleep is much deeper and longer than I have had in years. I feel more rested and full of energy when I wake up. I have been suffering from a sinus cold the last few days and usually I would have no energy and my symptoms would be exacerbating but I feel great!
Not too long after riding my bike, my right leg got it's energy back extremely quickly,I decided to wash down the outside of our house. I did it with no problems!! Usually my right leg would get fatigued and I would be limping and the sun would make me dizzy. My right hand would get extremely numb and painful too. This time I was spraying the house and craning my neck to look up at the second story as my hose sprayed it down and I realized I am standing on uneven ground with my head arched all the way back to look up and I'm not falling down! WOW! I honestly never thought I would be able to do this again either! Will I be able to landscape our yard this summer with my husband? I think I will. I know that sounds so goofy to someone who doesn't have MS but for me it's like a gift from the powers that be and I am SO GRATEFUL. Tears of Joy are running down my face right now. I wish the naysayers could see me now. WE MUST GET THIS TREATMENT OUT IN THE MAINSTREAM AS QUICKLY AS POSSIBLE.
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Ginger this is fantastic! I'm so happy for you. I agree that we must get this treatment available in Canada NOW! See you on Monday :)
ReplyDeleteGinger.. this is so exciting..i am soo happy for you!! I agree 100% .. we do whatever we can to make this treatment possible.. which is why i am trying to make contact with you. My sister is the chief physio at one of our local hospitals and after seeing you on CBC has some questions. Please consider this.. I have posted a message to you on TIM's "Ginger - sickof ms" and can be pm'd from there.. take care and keep looking to the skies :)
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Hey Patti! I rarely go to TIMS as I hate the format. lol Please e mail me gingermacqueen@shaw.ca
ReplyDeleteThat is great news Ginger, I am very happy for you. Have a great weekend!
ReplyDeletewhat can i say ? youve said it all keep up the good work ,keep riding your bike and think of us all cheering you on...
ReplyDeleteWOW, that is the best news Ginger!!!! I keep my fingers and toes crossed for the POWERS THAT BE to get REAL and do these ultra sounds to those who want them and carry on with the procedure without all the BS & excuses .... XOOX Marianne
ReplyDeleteYou give me so much hope Ginger! I want to feel what you experienced. Balance! No fatigue...no problems with hands....you're making my cry now :) Happy Tears though.
ReplyDeleteYou tend to do that a lot to me.
xoxo
Thank you for posting your observations. I am in line for the Doppler right now. I'm searching for a way to get the diagnostic that my neurologist doesn'T want to help me get. I'll be tested in June if this condition is mine too. IF it is, I'll have the request to get the surgery as soon as the specialist says I have to get that operation ! I always thought CCSVI (without knowing the name) was the cause of my MS. The way I got headaches, flashes, black outs, my sight getting dark for a while, that is exactly what I said to my neurologit when I first was introduced to MS : "Isn't it that the blookd somehow cumulates in my brains and it dies there and kills my brain cells or sumthin'?"
ReplyDeleteI'm pretty certain it is my cse too and I'll be giving my "témoignage" along with you someday.
Thank you for helping me keeping me flame burning !
Good luck ! can't wait to read more about your progress !!
Oh, my dear and well spoken Ginger! I cannot believe how many tears have flowed in happiness for all you incredible Pioneers. I am just so pleased on your results. I do have a question to ask. Did you have any bladder problems before? If you did how are you doing with that issue now? I am just so fed up and get so worn out with this issue. Once again thank you for fighting the GREAT fight. History in the making :))))
ReplyDelete@Dan-What diagnostic are you referring to? The Doppler protocols?? WHo is doing your scanning?
ReplyDeleteKeep in mind that even if the person doing your MRV and Doppler have the correct equipment, software and training, there is a chance you may get a false negative result. Dr. Simka did my Doppler in Poland and he only saw a problem on the right IJV but when they did the VENOGRAM it showed that my left IJV was far worse than my right.
Wonderful news Ginger, I can't walk without a walker and even that is hard and painful, let alone ride a bike, I am so excited for you. I'm wondering, my walking problems "just" started getting bad two years ago, if I'll get some of my ability to walk back once liberated? I've had MS fifteen years and it took thirteen years to get real bad in my eyes, or rather legs! I just need to be liberated very, very, soon!
ReplyDeleteI think one of the best things that is happening is that the people - like you, Ginger - who have been liberated are sticking around to help out the rest of us. We are grateful.
ReplyDeleteGinger it is a blessing to read your progress. It is so generous of you to share your experience with us. We are experiencing it with you in our imaginations and our hearts. Those crazy symptoms that come and go and increase with heat or time, no one really gets, but they are a tremendous burden nonetheless. Keep up the good fight and win with every step or should I say spin! I look forward to every update. I think we all do. Liberation for us all! :)
ReplyDeleteLove,
Vanda
Ginger you have me wanting to cry tears of joy for you too!
ReplyDeleteYou know I'm scared of being stented but I've got my name on Simka's list now too... I want my life back so badly! I've been trapped by this stupid thing in so many ways for too god damned long!
Ginger, first of all i need to thank you for taking the cameras with you. Bravo!
ReplyDeleteNow i need to point out that i am nearly crying here, reading your updates.
Please, please never stop doing that. Not until the whole world knows better at least.
I am off to Bulgaria in a couple of weeks myself and reading you gives me hope to say the least. For i am exactly like you were before the operation. I only need to be like you when this is over also.
Hang in there.
Yay Yay and again Yay! I am so happy for you and so hopeful for the rest of us...it WILL happen!
ReplyDelete@ costumenational- You're welcome-I was afraid our plight might be skewed to show CCSVI in a bad light but CBC did an amazingly professional and objective job and I think a lot of people's fear and trepidation of the treatment went away after seeing the show. I wont stop fighting until everyone can get treated in their own country.
ReplyDeleteYou are really fantastic!
ReplyDeleteI'd like to know what medication you were doing and now you continue to do something or is no longer necessary?
Kisses and much strength
Sorry, Luciano is my husband I am Elizabeth Pedrosa
ReplyDeleteThanks to you Ginger and your sharing with the rest of the world, my friend is getting the ultra sound done in June to see if she is constricted in her jugulars... Without learning about your experience we may have been years down the road before being informed of such a condition and the ability to fix this problem giving an increased quality of life and quite possibly a cure!! You ROCK!!
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